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: •••••••••• 🙍‍♀️🦋🤦‍♀️ •••••••••• I pushed myself too far again. Note to me: you are sick, accept it. •••••••••• • • • • • •••••••••• #chronicillness #chronicpain #spoonie #invisibleillness #fibromyalgia #chronicfatigue #gastroparesis #spoonielife #lupus #cfs #lymedisease #autoimmune #epilepsy #endometriosis #dysautonomia #chronicallyill #ehlersdanlossyndrome #fibro #disability #butyoudontlooksick #cysticfibrosis #autoimmunedisease #pots #ehlersdanlos #posturalorthostatictachycardiasyndrome #fatigue #crohns #multiplesclerosis #migraine #foodismedicine ••••••••••
This is my *yikes* face! I just updated the blog, so go click on the link in my bio to read more about the surprise crazy health and life events!! 😕😬😜 (Spoiler alert- 911 first responder details included!)
I thought this was a scam, but MAN WAS I WRONG. Holy Smokes... I just admitted I was wrong! I thought how the heck could some magic coffee and a supplement changes my life. I mean I have too many chronic diagnoses to count on one hand.⁣ ⁣ Boy, did I have my mind blown?⁣ ⁣ My Fibro Brain FOG..... It's MIA, almost all the time.⁣ ⁣ My Flare-pain-spots... I almost forget where they are!⁣ ⁣ My empty feeling inside... Is now full of laughter, joy, and freaking tons of energy.⁣ ⁣ Chris, my honey, is happy because I have no more explosive crazy outbursts and I'm calm and collected.⁣ ⁣ Not a scam at all... I'm winning in my health! I'm helping others win with their health. And on top of that, I'm paying for all our groceries with this little side business. ⁣ ⁣ BOOM Winning!
Thanks for all the love and support on my last post❤️Screw the separate account for my “non-instagram life”, if you’re bored of my real life you can unfollow me 😘 These pics were taken earlier in July after I’d been bed ridden for 3 days from exhaustion. What was I exhausted from? Literally from eating food and watching the chucks at Stampede and some slight work stress (nothing compared to what I’ve dealt with in the past). Seems like nothing to a normal person but for the past couple of years, my life has been a constant rollercoaster of juggling the different stressors in my life, choosing where I want to spend my energy and honestly just trying to ignore my symptoms- fatigue, occasional body pain, cognitive impairment and insane brain fog being are most persistent. Basically just feeling hungover all day, everyday 🤘🏽 . I’m at a place now where my strategy to ignore my symptoms it is actually making things much worse. I realize I need to take a step back and take care of me in a way that my body can understand I’m trying to help it heal. A structured meal schedule, nutrient rich foods and supplements, no caffeine, no sugar or alcohol, light daily movement (yin yoga or walks), and sleep- lots and lots of sleep. 12-14hours a night 🤞🏼
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Invisible illnesses are so real and sometimes the "invisible " makes it hard for people to understand.i may have my hair and makeup done. However that doesnt mean I'm not sick. Im in pain every damn day of my life. I've learned how to mask it. I've learned to make the best of what I've been dealt. Its not always easy and somedays its impossible. #addisonsdisease #adrenalinsufficiency #autoimmunedisease #chronicillnesswarrior #invisibleillness #raredisease #chronicallyawesome #chronicpain #steroiddependent #hashimotosdisease #butyoudontlooksick #fibromyalgia #dysautonomia
If I sit with my legs folded, Opalkitty will appear. . . . . Walked Sehome Hill Arboretum today. Got a doozy of a visual migraine (spectacular aura) that thankfully didn’t result in a standard migraine. Weird. Wondering if I’m releasing stored up estrogen in all the fat I’ve burned off. Always been most sensitive to hormone induced migraines be they ocular, abdominal or standard. #Opalkitty #mainecoonkitty #tabbycat #longhaircat #tinycat #hssv #jessiesfosterkittensalumni #rescuecat #adoptedcat #fosteringsaveslives #coicommunity #butyoudontlooksick #migraines #hehadtodrivemycarbackfromourhike #spooniefitness #spooniewentoutside #spoonielife #migrainessuck #needmigrainemedsinhikingbagclearly #depression #anxiety #cptsd #invisibleillness #middleagedwoman #startalloveragain #hiking #sehomehillarboretum #thirdpnwsummer
This pic was taken after being discharged from the hospital 🏥. I have been home resting. I am so thankful for all the kind words and support. Having a chronic illness is exhausting and challenging not only for me my doctors as well. #lupus #lupusawareness #chronicillness #autoimmunedisease #lupuswarrior #invisibleillness #spoonie #sle #chronicpain #anxiety #lupusproblems #autoimmune #lupussucks #chronicfatigue #systemiclupuserythematosus #lupusfighter #depression #lupie #rheumatology #rheumatoidarthritis #butyoudontlooksick #arthritis #lupusnephritis #lupuswolfpack #kidneytransplant #kidneytransplantrecipient #chronickidneydisease
shows up unannounced, unwanted and always at the wrong time. At least five million people worldwide have a friend named Lu. She is annoying and draining. She makes you sad, mad and anxious. . Lu might shrink into the background but she’s never going away. . Life with Lu is an adventure, full of challenges, ups and downs. She makes you slow down and revaluate things. She is life altering. . We all try to love Lu, see the good in her. Some days are harder than others. On the hard days, fighting with Lu is all encompassing and exhausting. On the hard days surround yourself with your loved ones. Focus on the good. Laugh hard and love yourself harder 💜💜 . . . . . . #lupus #lupuswarrior #autoimmunedisease #lupusawareness #chronicpain #fibromyalgia #lupussucks #chronicillness #lupuslife #lupusfighter #reumatologia #butyoudontlooksick #autoimmune #chronicillness #invisibleillness #health #chronicpain #pain #arthritis #anxiety #myfriendlupus #fibromyalgiaawareness
I have what is called Retrograde Cricopharyngeus Dysfunction (R-CPD). It is basically the inability to burp or belch due to the upper esophageal sphincter's inability to relax to allow air back up through the esophagus. (Swipe past the videos for further explanation of R-CPD) This is also the reason why despite my gastroparesis and insane nausea, I rarely vomit bc this sphincter is so tight. I have always had this ever since I was kid. I never burped nor could I make myself burp. In fact, the only times I ever belch is right before I'm about to vomit. - - Instead of burping I get these really annoying "mini buprs" - gurgly noises in my lower throat. I can feel the air, but it just won't come out. I've ever tried to burp myself and have someone burp me to no avail. The noise you are hearing is coming from my lower throat. It might sound sort of like a burp but it isn't. There is no taste and there is no smell and I'm only opening my mouth to make it more audible since it's hard to hear on video. Sometimes it's more comfortable to open my mouth and take a deep breath but it really makes no difference. I get these nearly everytime I drink or especially if I eat something and definitely drink anything with carbonation. Sometimes it lasts 10 minutes sometimes they last hours. They often cause nausea if they last long enough. Not being able burp just adds to my bloating issues since the only other way out is going through my intestinal tract. - - I'll also get "hiccup burps " which aren't burps either, it's like a single loud hiccup. Not sure why that happens lol #retrogradecricopharyngeusdysfunction #JAGAsyndrome #gastroparesis #intestinaldysmotility #gitractparalysis #dysautomomia #autonomicdysfunction #autonomicneuropathy #ehlersdanlossyndrome #cEDS #hEDS #eds #autoimmunedisease #chronicillness #chronicfatiguesyndrome #invisibleillness #zebrastrong #mastcellactivationsyndrome #MCAS #ivfluids #ivinfusions #butyoudontlooksick #postie
That’s all there is to it! You can do it! ✨Message me for your free color match to get started. Follow & join me at LINK IN BIO ⬆️
I feel like a puzzle, and I’ve got all these pieces but I just can’t figure out how to put them together. I’ve got a few edge pieces and some center pieces but I have no reference image or comprehensive colors to guide me through putting it together. So I’m left with this chaotic unfinished puzzle. . . I feel like I’m the one responsible for investigating and self-diagnosing. But I don’t even know where to begin. It’s like there’s this massive thing wrong with me and all I’m finding are symptoms. A cluster here, a cluster there. And I see no connection between them, but I’m convinced there is one. . . It’s like there’s this whole city and I know the ins and outs of these little landmarks of the city, but no idea how to navigate between them. So they’re simply islands floating around with no connecting roads. Seemingly unrelated, but truly they are connected by highways and side roads, I just have no idea what they are or where they are. And you’d think the job of medical professionals would be to find those connections and discover the big picture that I can’t see. But it seems that nothing gets investigated or discovered unless I find it first. I, the unprofessional.... finding these connections myself. I’m not sure what to make of that. . . My memory is spotty in the same way, it’s like there’s little islands of memory. Mostly things I’ve spoken about before or others have spoken with me about. But their place in the timeline and how they connect to each other is completely lost for me. I’m not sure how to navigate my memories. . . It feels like I’ve lost my past to a big pile of unorganized files and pictures and emotions that I don’t know how to make sense of.
We all deserve a treat for getting through another Monday. I like my treats to be of the food variety... most of the time. . . . . Today was quite a Monday I missed therapy because traffic... and I had more than one food prep snafu but there was no getting me down today. I'm riding out this change in meds... 😅 Today feels like it's in a completely different universe than yesterday was... hmmmm... maybe it is 👽👽 . . . . On my plate I have some vegetarian sushi made by me 💜 . . . . . .   #sushi #instafood #sushitime #foodporn #foodstagram #homemade #spoonies #spoonie #spooniesupport #spoonielife #spooniecommunity #spooniestrong #chronicallyawesome #chronicallyfabulous #chronicallysuccessful #chronicallymotivated #spooniewarrior #invisibleillness #dayinthelife #sickgirlsclub #chronicpainwarrior #mentalhealth #anxietyfighter #butyoudontlooksick #monday #mondaymotivation #selflove #mondaymonday #mealprepmondays #vegetarian
It's peaceful, it's tranquil, it's beautiful. My brain however is not. As I walked further and further away from my house the storm of thoughts started to swirl. I started becoming overwhelmed by my body, it's normal reaction to exercise: Sweating, shallow breathing & increased heart rate. All these sensations started feeding my intrusive thoughts. Imagine standing in your head, a dark space and you look above and see a storm of words and sentence swirling and circling. Now imagine how hard it is to pick which thought is the problem, the antagonist. It's nearly impossibly because in this moment of panic and ridiculous thoughts, I can't figure out which one is causing the problem. It seems to be a mix of internal and external factors. Thoughts I managed to capture: I feel like I'm going to faint. What if I don't make it home? What is I collapse? I don't want to collapse in front of this woman walking her dog. What if the dog attacks me? What if this woman doesn't stop and help and I die here? All of these thoughts plus more. All of this ridiculously swarming in my poor brain. My mental health is complicated, it's very complicated because if you know the anatomy of anxiety, social anxiety & CPTSD it can originate in different ares of the brain, because my anxiety is triggered by physical sensations & thoughts it's much harder to treat. CBT isn't the only answer for me but it's a start. This is why exposure therapy is important. I cried walking home, overcome by panic and fear and shame. I'm ashamed. That's something that's not often spoken about when we speak about mental illness. The shame of not being able to fit into social norms... Continued in blog post link is in my profile or look up Life Is Hers on FB and follow my page for larger posts and stories 💜💜💜
Today is my 6th Benlysta Infussion Anniversary 》 Sudah 6 tahun amik treatment ni 》Banyak perubahan • Alhamdulillah • Arini pun is my 2nd day Benlysta Infussion kali ni 》 untuk cycle yang keberapa pun tak tau la 》 lost count dah • 😅 Bangun pagi kaki tak kuat nak pijak lantai 》 macam ade jarum cucuk tapak kaki bila nak jalan • Ok tayah jalan arini 》 Duduk je atas katil • 😅🤣 #Hospitalised #Warded #BenlystaInfusion #Selfie #SelfPhoto #Zoe #Sle #Lupus #LupusFighter #RaiZoeMika #LupusLife #LivingWithLupus #lupuspatient💜 #Lupie #Spoonie #ButYouDontLookSick