Search Tags for Lupie

I have had the WORST steroid acne since that massive dose at the hospital. You guys- I get maybe 3 pimples a year but this week I've been a crater, not even exaggerating. But the point is- you cant tell 😁 oh @seibellabeautyexperts how I love your makeup. Fabulous coverage and bonus is that I'm not putting more crap on my face because it's a toxic free company. You all know how bouji I am about my skin. This acne has been such a frustrating part of treatment. Small potatoes compared to the hair loss, vomiting, muscle cramps but for some reason the acne is what bums me out. First world problems but atleast I have my #seibellabeauty foundation. #lupusawareness #lupuswarrior #lupie #lupus #chronicillness #chronicfatigue #cfs #autoimmunedisease #autoimmune #autoimmuneawareness #spoonielife #spoonie #lupiechick #lupielife #lupussupport #lupusfacts #lupusfighter #toxicfree #steroidsarethedevil
When you have #lupus and are in #chronicpain all the time there’s no mental and physical energy left to do everyday things and take care of yourself in the way you otherwise would... This poses many challenges including learning how to deal with people who don’t understand what you are going through and unfortunately... they are everywhere... It can be your co-workers, relatives, other people you know or meet in public places and even sometimes your friends. You may reach the point that you are too #sickandtired to explain to everyone your disease and how it affects you, just don’t want to talk about it anymore and pretend that it is not there but... #sle let’s you know through pain and many other #autoimmune symptoms that it didn’t go away and is a huge part of your life that you cannot ignore. P. S. I’d like to let you know that a reputable health company is giving FREE probiotic and high quality premium protein. People who have impaired digestion, low energy #fatigue brain fog, depression, #thyroid problems #autoimmunedisease and low immunity often have protein deficiency and impaired digestion and #guthealth due to nutrients malabsorption and not enough good bacteria. This free high quality premium protein can provide nutrients that are often lacking in people with lupus and autoimmune disorders. And it provides 10-fold absorption. Free live potent probiotic can help repopulate your #gut with good bacteria. It’s truly free, no strings attached, worldwide shipping. You can get it via my website https://lupusselfhelp.com/free or just click the link in my instagram profile @lupusselfhelp <<<===click
This is a quote from Laura’s book, The Art of Feeling. I happened upon the quote when looking up resources for @lupus_letters I’m not feeling quite this level of despair at the moment but I know what it feels like. I’ve been there. I’m posting this because I’m sure others can relate to the feeling of having lost what you once had. Lost energy. Lost hobbies. Lost friends. Lost career. All due to complications of chronic illness. I understand. You’re not alone. . . Don’t lose hope. We adjust our sails. We ride out the storms. We find new hobbies that fit into our lives better. We meet friends that understand. We educate others about our illness. . . #chronicillnessquotes #chronicpain #chronicillness #invisibleillness #spoonielife #lupie #spoonie #lupus #fucklupus #fuckpain #fuckchronicpain #fibromyalgia #mentalhealth #lupuswarriors #lupusawareness #pain #digitallettering #ipadlettering #procreatelettering #letteringdaily #letteringcommunity #communityovercompetition #calligrafriends #calligraphycommunity #handletteringcommunity #handletteringpractice #letteringpractice #calligraphyquotes #quotesaboutlife #painquotes
Letting go.. the hardest part and lessons in the life.. At least for me. The hardest with people and places which are unique in this mad world full of pain, egoism and lies. #allthatyouhaveisyoursoul It's always hard and it always make me sad to leave.. But I KNOW THAT THESE PEOPLE AND PLACES ARE BLESSINGS on the other side. So I'm sad but THANKFUL coz I had the possibility to met them and be there. BE ALIVE. Just breathe. BE YOU. Stay alive. May God bless all. Love, hugs n 🍫 #meancinderella🎠 #lupie #ontheroad #banskastiavnica #kalvaria #mylove #letitgo #happymorethankyouplease #happinesrealonlywhenshared #be #beyou #youworthy #youdeserve #selfcareishealthcare #in #invisibleillness #lupus #keepgoing #keepdancingonmyown #dontgiveup stay #alive #dontbedeadbeforeyoudie
About me. My defining year was 2011. It was the last year of my degree. I danced, jogged, stayed out late, studied hard, lived with friends and looked after myself. I was on track for awesome marks and excited about the future. I'd been feeling more tired, but figured it was final year - Who wasn't tired! One morning I woke up and my knees were so painful I couldn't walk to the other side of the room. The symptoms grew worse. I was so exhausted I had to sit down half way up stairs. My knees hurt so much I supported myself with my hands to get about, but that made my hands and wrists excruciating, so I climbed stairs on my bottom using my elbows. And the brain fog! When I started my degree I read complex essays as easily as drinking water, but in those last months I had to reread sentences over and over. The information wouldn't go into my brain. It was terrifying. Thanks to amazing doctors I was diagnosed with Lupus, and given steroids and other meds. Things improved physically - but I finished my degree missing out on the grade I'd been on track to achieve, with no understanding of what my body could handle, and with my career aspirations now seeming impossible. I tried to find a job, but inexperience and anxiety about my body meant I couldn't. I was sitting home alone one day, as my mum had popped out. I didn't know how to fix things. Without a practical solution and feeling supremely fed up and frustrated, I started thinking of seemingly impractical solutions instead. I had money I'd saved up during uni - so I thought, I wonder how far I could go alone? An hour of Googling later, and my mum returned home to me triumphantly proclaiming, "I'm going to Cambodia!" I had only been on a plane twice before. I had never gone further than Spain. Nor travelled abroad alone. I took that trip to Cambodia less than a year after being diagnosed with Lupus and it was the best thing I could've done. Katie x #EnabledExploration #Travel #ChronicIllnessTravel #ChronicIllness #Lupus #Lupie #InvisibleIllness #SpoonieLife #Spoonie #Cambodia #Asia #SiemReap #FloatingForest #TaProhm #AngkorWat #Diagnosis #LupusDiagnosis #TravellingSolo #Explore #Discover #SoloTravel
Hi I miss my Instagram family, I had a tuff week and thought I would up date you. *My son came down with a virus= severe headache, muscle ache nausea Thankfully his only lasted 1 1/2 day *Me same symptoms except fever 102.3 × 3 1/2 day then my muscle aches were back to my normal however I was still nauseous and light headed. Friday I go to general Dr. Because I had bladder spasm and panic(kidney transplant) and still lightheaded *Results: dehydration and Acute Kidney attack My kidney function was affected . I have a kidney transplant so I have been in the hospital. Vital checks every 4 hours in between that IV changes and hospital noise I thought this would be a good time to update. Photo: My ER room from friday I am in a room now #lupus #lupusawareness #chronicillness #autoimmunedisease #lupuswarrior #invisibleillness #spoonie #sle #autoimmune #chronicfatigue #systemiclupuserythematosus #lupusfighter #lupie #rheumatology #rheumatoidarthritis #butyoudontlooksick #arthritis #lupusnephritis #lupuswolfpack #kidneytransplant #kidneydisease #kidneyfailure #organdonation #giftoflife #kidneywarrior #newkidney #chronickidneydisease
#lupus is a #chronicillness that is often an #invisibleillness to people around you... They don’t see and as a result don’t understand how challenging it is to live with #chronicpain #fatigue #brainfog and many other #autoimmune symptoms especially during the flare ups. How do you explain to people what being #chronicallyill really is for you? P. S. I would like to let you know that FREE live potent probiotic is back in stock and FREE high quality premium protein is still available! Both can be very helpful for people with Lupus and #autoimmunedisease . Protein can replenish nutrients that are often get depleted in people with lupus and #autoimmunediseases , may help with energy and supporting recovery and healing process. Probiotic can help to improve digestion, fatigue and absorption of nutrients and strengthen the #immunesystem . It’s truly free, no strings attached, worldwide shipping. You can get it through my website https://lupusselfhelp.com/free or Just click the link in my instagram profile description @outsmartlupus <<<===clickable link
Sometimes is the heaven place on the Earth✨ in Banská Štiavnica 💜 I arrived home just today and I can talk now about huge pain and fatigue, but when pain is a part of your life, it's really does matter? _ _ ALL what I CAN SAY NOW, THANK YOU GOD, THANK YOU UNIVERSE, THANK YOU MY BODY, THANK YOU MY PERFECT COMPANY. I CAN NOT REMEMBER WHEN I WAS SO FUCKING HAPPY AND FREE AND ALIVE. (oh yeah in May, in the same town) AND I LOVE YOU MY "LITTLE" SOULdog SISTER and miss you allready, 💔🐾 The True Happines worth for every pain. May God bless all. Love, hugs n 🍫 #meancinderella🎠 #god #nature #banskastiavnica #stiavnica #blessings #thankyou #love #joy #pure #happiness #happymorethankyouplease #happinesrealonlywhenshared #intothewild #lupie #onmyway #invisiblepain #invisibleillness #chronicillness #chronicfatigue #lupuswarriorprincess #sponie #life stay #alive #dontgiveup #youdeserve #keepgoing #keepdancingonmyown #dontbedeadbeforeyoudie #zijuted
💜 random personal post: I started a new account @chronicluna for my chronic illness digital paintings! this was my first one, “lupus”💜🦋 . I haven’t been able to paint or draw traditionally for years due to my chronic vascular compressions & gastroparesis pain, which has been SUPER hard on me as art used to be my main coping mechanism. But a couple weeks ago I was like wait...why have I never tried digital painting?!? And was so thrilled to find out I can still do that☺️ . So here’s my first ever digital portrait (made on my ipad mini using @procreate)🖤 It’s just for fun, but also to help show the beauty in chronic illnesses! I’ll be doing all different kinds of conditions, so give @chronicluna a follow if you’d like to join in on that fun☺️💜 . . . —— . 💜the awareness ribbon color for lupus is purple 🦋the common symbol for lupus is a butterfly . ❤️one of the most common lupus symptoms is a “butterfly” face flush ✨there’s also a lupus constellation tattoo on her neck 🐺and last but not least, “lupus” is latin for “wolf”, so there’s a wolf tattoo on her shoulder (with a 🌙 for chronic luna) . . —— . . . . . . . . . . # #procreate #digitalportrait #digitalpainting #ipadart #chronicillness #characterdesign #drawsomething #procreatepainting #chronicpain #chronicillnesswarrior #chroniclife #spoonie #artistsoninstagram #artlovelight #lupus #lupusawareness #lupuswarrior #lupusfighter #lupuslife #butterfly #lupusbutterfly #autoimmunedisease #spoonielife #disabledandcute #lupie #chronicpainwarrior #procreateartist #procreatedrawing #digitalart