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Last night, our writer @jenny_buttaccio attended the @globallymealliance VIP Research Dinner. Both @staterepkarenwhitsett and State Rep. Daniel Swanson were there (from our blog People to Watch in 2019: http://ow.ly/lBXU30nhrpt), along with @alitmoresco (from How to Deal with #Lyme skeptics: http://ow.ly/c6Ar50uUp9u). We can't wait to see more images from Jenny tonight from the rest of the GLA gatherings! (If you'd like to read these articles, click the #linkinbio) • • • • • #health  #wellness  #spoonie  #spoonielife  #invisibleillness  #realtalk  #lymedisease  #chronicillness #community  #disease  #prevention  #treatment #lyme #coinfections  #lymeawareness  #diagnosis #stress #natural #remedy #holistic #holistichealth #chicago #illinois #globallymealliance #workingtogether #policy #benefit
Thankful for all I have asked of life so far, and all it has given me. Wonderful family, friends, opportunities, experiences/lessons (some very hard) and many blessings. 🙏☺️
So my brain has been majorly fogged and it's been really difficult to create looks as I just can't visualise how I want things to turn out anymore, but with the help of my iPad and face templates I can design away so I have the end result in front of me before even starting! Always trying to find a solution to every problem! - ♡ @morphebrushes × @jeffreestar pallette, wake and bake, Nate and fast lane - #makeup #makeupblogger #style #motd #makeupjunkie #makeuplook #fashiongram #fashion #fashionblogger #ukblogger #spoonie #spoonies #chronicillness #chronicpain #invisibleillness #ibs #ibd #undiagnosedillness #selfie #love #beauty #instagood #photooftheday #makeupaddict #spoonielife #spoonieblogger
#500spoons #day419 Do you feel crps pain during sleeping? Yes I do. The pain can wake me up. I bite my teeth so hard on eachother that my teeth break of. So I wear teeth protection at night. I dream about the pain as well. The first few years crps didn't got involved in my dreams. Nowadays it can infiltrate in the story in my dream. #crpsawareness #chronicallyillawareness #crps #rsd #illness #invisibleillness #pain #spoon #spoons #spoonie #chargie #warrior #crpswarrior #momsofinstagram #mommub #mom #kids #breastfeeding
Warten _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ Krank sein heißt vor allem warten. Warten auf den nächsten Arzttermin. Warten auf Untersuchungsergebnisse. Warten auf die Wirkung von Medikamenten. Warten darauf, einfach normal weiter machen zu können. Warten auf Hilfsmittel. Warten auf die Diagnose. Krank sein heißt Geduld aufbringen zu müssen. Eigentlich sollte das nach 8 Jahren eine meiner leichtesten Übungen sein, aber ich werde immer ungeduldiger. Ich möchte endlich normal mit meinem Leben weiter machen. Und nun heißt es wieder: warten auf den Termin beim Hausarzt, warten auf noch mehr Termine und Untersuchungen und warten auf das Ergebnis vom Gentest. #spoonie #chronicallyill #gentest #warten
I sometimes wish I could do a runner from having Crohn's, but it's just not that easy! Instead, I make the most of my situation and try to deal with it the best I can. Having a supportive network is so important, that's what drove (pun intended) me to build Instacrohns 💜
Happiest girls are the prettiest girls. But it’s impossible to be happy alllll the time which is exactly why I spend so much money at Sephora.
Part 2 of the Solve M.E. Back to School webinar series with Lisette Duarte, a special education advocate. This is a parent-focused webinar aimed at your child's right to a free and appropriate education. Lisette Duarte discusses Individualized Education Plans (IEPs) LINK IN BIO #pwme #EndMECFS #canyouseeMEnow #cfs #chronicfatigue #myalgicencephalomyelitis #solveME #MECFS #spoonie #spoonielife #chronicillnesswarrior #invisibleillness #CFSME #solvemecfs #livingwithME #severeME #chronicillness #chronicallyill  #sickandtiredofbeingsickandtired #invisibleillness  #spoonielife #backtoschool #back2school @solve_cfs #solvemecfs #solveME
In honor of @allissa.wads who recently received her #doublelungtransplant I wanted to share a picture of the bling I wear at work each day. The #cf lungs pin is from @btwolungs and I wear it to support #cysticfibrosisawareness. Each day we have is a blessing. . . . . . . . #cysticfibrosis #doublelungtransplant #justbreathe #cf #cfer #spoonie #cfwarrior #cfspouse #projectcfspouse #65roses #sixtyfiveroses #cflife #curecysticfibrosis #df508 #cflife #cysticfibrosisawareness #breathe #cff #donatedlungs #donatelife #organdonation #laceytslegacy #addingtomorrows #cfirl
Throwback to our holiday in one of my favourite places, Florida, take me back ☀️ I have so many photos (thank you @disneyphotopass ) from many amazing moments in this holiday so I’ve tried to pick my top 10 pictures that sum up the two weeks ✨ • Accessibility note, for me these parks and the cast members are always there to help you and your group to make it the best experience which is another reason why I love this place so much 💙 • #florida #magickingdom #disney #summer #holiday #waltdisneyworld #universalstudios #inclusive #disabledmodel #disability #bodyimage #awareness #diversity #model #makeadifference #invisableillness #photography #disabilitymodel #abilitynotdisability #teamzebedee #zebedeemanagement #instastyle #instafashion #fashionmodel #wheelchairmodel #wheelchairuser #cfs #chronicfatiguesyndrome #spoonie