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When I started Keto 6 weeks ago, I really did not have a goal in mind. All I knew going into it was I wanted to feel better and be healthy. See, aside from being a breast cancer survivor I also have gastroparesis. Without going too much into detail GP is paralysis of the stomach muscles. Which means my stomach can take up to two days to digest food! To give you some perspective a health stomach takes about 90 minutes to empty. When food sits in your stomach for more than 90 minutes you have symptoms of heartburn, nausea and feeling of fullness. Which was my norm, GP is not curable they can only treat the symptoms. For 6 weeks, I have been asymptomatic that has never happened since I was diagnosed 2 years ago. The most I have gone is maybe 1 week tops. I am not saying Keto has cured me but it has helped and most importantly helped me regain my quality of life. Goals, with two surgeries coming up in November I have decided to set a goal weight. I hate scales they have been such a huge part of my life. And when I started keto I said I would gauge progress by how my clothes felt. But with my mobility being limited next month, I need to set this goal. I have readjusted my macros and will need to keep my net carbs under 10. Stay tuned to see how this all goes. . . . . . . . #keto #ketolife #ketogoals #goals #weightgoals #breastsurgery #bunionectomy #gastroparesis #gastroenterology #ketohelped #ketohelpedme #giproblems
Update on Henley: Henley is growing! She’s reached a weight of 10 pounds 11 ounces. This is amazing news and we’re so grateful. The bigger she is, the bigger her heart will be and it will make her open heart surgery easier for the doctors. 🙏🏼🙏🏼🙏🏼 . However, the bigger she gets, the harder it is for her heart. Her heart is working 4 times harder than a normal heart, which means her lungs are working harder too because her heart is pumping 4 times as much blood into her lungs as it should. This is dangerous because it causes fluid to build up in the lungs. . Henley has had a slight cough for months due to the extra fluid in her lungs. But the past couple weeks, it’s gotten much worse. She coughs without being able to stop. She coughs to the point of vomiting. When she vomits, she either throws up the tube with the vomit or she gags on the tube while she’s vomiting. This is so scary because as she’s gagging, she can’t breathe. This morning, I had to put in her 4th new tube in the last 10 days. She should be keeping them in for 2-4 weeks at a time. . We went to the hospital yesterday and did a chest X-ray. The X-ray confirmed her heart failure symptoms are getting worse. Her heart is more enlarged and her lungs have more fluid in them. . The doctor prescribed more diarrhetics to help with the fluid build up in her lungs. However, the diarrhetics cause frequent urination which could cause dehydration. If it’s causing dehydration, the first signs are blurred vision and dizziness. But Henley can’t tell us if that’s happening so we don’t know. We will go back to the hospital Thurs. to do blood work to check to see if the drugs are causing too much dehydration. We have to hope her little body is tolerating the drugs and they help her lungs until her surgery. . Surgery is scheduled for November 6. Please continue to keep us in your thoughts and prayers. We greatly appreciate it. . Thankfully, aside from these issues, Henley is usually a pretty happy baby. The doctors have all been surprised and shocked by how strong and happy she continues to be despite these challenges. She is a fighter! That’s for sure. . .💜💜💜 . #gerberphotosearch2018 #gerberbabysearch2018
Gave my girl Aliya a healthy haircut, and then gave her some beach waves 🌊 • Thank you for trusting me with your hair, I know how hard it is when you have an attachment to it. 💆🏼‍♀️ • Who wants to see a video of me styling her hair like this?? 🙆🏻‍♀️
The trifecta of stressful things is upon me. . #SIBO testing today, then on Thursday the culmination of a year of fighting to get proper hospital treatment. I'm terrified how it's going to go. . After being signed off for so long it goes over the end of my employment term, I had an email that was the work equivalent of "we need to talk". I'm terrified how it's going to go. . There's been some pretty stressful relationship things going on too; not in my relationship, but things that have a direct affect on me. I'm terrified how that's going to go. . It sort of feels like the walls are closing in on all sides, and I can't breathe. I've been on the verge of a panic attack non-stop for several days now. . #MentalHealth #MentalHealthProblems #PanicAttack #BPD #ThisIsHardWhenYoureAlone #AloneAndCantCope #IWantToGiveUp #TooMuchForOnePerson #EhlersDanlosSyndrome #PoTS #EDStype3 #hEDS #Gastroparesis #GIproblems #Gaatritis #GERD #IntestinalDysmotility #UrinaryRetention #SpoonieLife #SpoonieProblems #ChronicIllness
Anyone deal with low stomach acid or have any insight for me? While my UC is doing okay at the moment for the most part, I'm struggling a lot with upper GI issues. I'm thinking low stomach acid might be the culprit as I have a lot of the symptoms, especially those first two. Feeling miserably full for hours after eating a small meal, and an upper abdomen that is rock hard with gas 90% of the time is making it hard to eat more than 2 meals a day. I did the baking soda test and failed 3 days in a row. I'm trying apple cider vinegar and have digestive enzymes on the way, but curious if anyone has any other ideas? For the record, I did tell my PA about it and had an endoscopy which found nothing and have told my functional medicine practitioner as well but she just kind of scratched her head. She doesn't specialize in GI issues. #uc #ulcerativecolitis #inflammatoryboweldisease #ibd #gihealth #lowstomachacid #giproblems
Sorry I haven’t posted in awhile! Hopefully I will be back to posting more often. I haven’t posted in awhile because not much has changed. Health update- I’m still unable to eat or drink much! I’ve been having some really rough days that my stomach rejects everything I intake and end up vomiting the entire day. I am waiting to hear back from my GI team to see what they think. #gastroparesis #achalasia #dysautonomia #gastroenterology #giproblems #spoonie #nausea #poemprocedure #spoonie #zebrastrong #chronicillness #abdominalpain #hEDS #staystrong #achalasiawarrior #gastroenterology #peroralendoscopicmyotomy #ehlersdanlossyndrome
The GI flare continues; I literally had to throw underwear away at clinical yesterday and I’ve been nauseous and in pain for days. I also have a cold so I’m sure the medicines from that are messing me up even more than necessary. I’ll be calling my GI because the mast cell specialist GI she sent me to hasn’t called me back yet. I’m sure I’ve explained this before but I have too many mast cells in my colon and my scans show colitis but my GI hasn’t found anything wrong with my biopsies outside of the mast cell count, hence the referral to the mast cell GI. I’ve discovered a condition called mastocytic enterocolitis that is a colitis characterized by biopsies like mine, so I’ll have to ask her about it. In the mean time, I’m just assuming my mast cells are flaring in my intestines and colon and I’m eating really gentle and kinda cutting back on my solids and doing more liquids to give my system a rest. Two more clinical days this week and you bet I’m packing extra underwear 😂 . . . . . #spoonie #GIproblems #MCAS #mastcelldisease
This is my absolutely amazing husband Brian. In 2013 Brian got super sick while working a wedding in Florida (we’re wedding photographers). I was super pregnant with Jonah & had to do most of the wedding solo because he was 🤮💩in the bathroom, but pretty much after that bout of sickness he’s never been the same. He’s had tons of GI issues & suffers with stomach pain most every day. I don’t know how he does it, but he continues to push through it. Even after dozens of medical tests, labs & blood work we still don’t really know what’s actually wrong; and that gets SUPER frustrating (and scary). I can’t even imagine the frustration he feels day to day ☹️ . . A couple years ago Brian was diagnosed with gastroparesis. It’s basically when your stomach muscles don’t work fast enough; they’re “paralyzed” in an sense. He took different medications to help, but none of them seemed to work. This year he was checked for any autoimmune illnesses (they run in his family), but all those tests came up negative. We were frustrated YET again. Soon after, he saw another GI doc (I’ve lost count) & was diagnosed with IBS. He changed up some of his diet & seemed to be doing well (with the addition to some medicine), but then he had another bad flare up of pain. It’s been so hard for him. There’s nothing worse than seeing someone you love in so much pain; especially if that pain literally never goes away. There isn’t anything I can do but be there for him, and pray for/with him. It’s hard. I know God’s got some healing in store for him, and I know that He’s already been healing him (slowly); however, sometimes I ask God why can’t He just tell us what’s wrong?! I wish I could take it all away. I say it ALL the time, but we truly believe Brian is gonna be healed someday. We also believe he will have an AMAZING testimony to share with the world, but in the meantime we will continue to pray & believe God for a miracle! I love you so much Brian 💕..also, you’re dang hot 🔥 . . #iloveyou #husband #hubby #mylove #babydaddy #sickness #giproblems #gastroparesis #stomachissues #stomach #ibs #ibsdiet #diet #gettingbetter #healing #Jesus #God #holyspirit #miracles #praying
“The very first thing my #GastroDoctor says after coming through the curtains after my #colonoscopy – “I don’t know what you are doing, but you are doing THE RIGHT THING!” . I was diagnosed with #UlcerativeColitis 5 years ago. No meds they gave me helped me. So I took #Miralax and #Colace every day. That was a bandaid and was doing more damage to my body than good. Then I found these supplements. . I have been on the products for a year. 😆🙌 TODAY 🙌😆 I GOT THE REPORT THAT THERE IS NO EVIDENCE OF ULCERATIVE COLITIS. . 🌟ALL GLORY AND PRAISE TO GOD!🌿🙏🙌 . And when your GI doctor asks for more information on these products, you know you have found the #realdeal 🌿👌” . Testimony after testimony of people no longer suffering from their chronic illnesses. Heal the gut = heal the body. 👊 . . . . . #ulcerativecolitisfighter #ulcerativecolitiswarrior #ulcerativecolitisfighter #giproblems #healthegut #healyourgut #lifewithchronicillness
Today is a celebratory day. I have come so far with my POTS.. I am finally walking on my own, though the distance is short. To be independent once more is a great feeling and I am so proud of myself. I have been doing good with PT.. I am eating more mush and slowly trying to increase solid Intake (like eggs) .. .. We got into a specialist who is only 3 hours away as well!! I have an appointment on January 4th.. I am very excited and curious to see what comes of the appointment .. .. I am pushing through doing my best.. especially for my sister who just had surgery today. And for my tired parents, so I have made food for my two sister and help my recovering one in simple things like helping get up .. .. #recovering #pots #dysautonomia #eds #sjogrens #giproblems #fighter #chronicwarrior #positivethoughts #invisibleillness
Poor bub didn't even make it an hour at school this morning. Settled in watching Wild China on Netflix now. #giproblems #bratsdiettime 🙏🚫🤢
I'm piecing together how my physical health affects my mental health and vice versa. Unfortunately there's a disconnect between physical and mental well being in medicine. But the truth is they are intertwined. I'm lucky enough to have some educational background on both to be able to put the pieces together. Food affects our physical, mental and spiritual health. Our bodies minds and hearts. I've got to build a stricter diet to have my gut truly heal. Wish me luck! Xoxo #foodforthought #holistichealing #mentalhealth #physicalhealth #celiacdisease #gluten #glutefree #leakygut #anxiety #deppression #giproblems #digestivehealth #wellness #medicine #doctors #disconnect #gut #guthealth #GIproblems #foodporn #desires #wellness #balance #islam #onethird #healthiswealth #diet