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This picture brings back so many memories. On this day we received that dreaded phone call that the blood cultures that were drawn the night before came back positive for Klebsiella. Mom knew way too much- this was a gram negative bacteria ... these are hardy bugs that are hard to treat. It took every ounce of our being to stay composed, gather ourselves, and get to the hospital. Dad drove like a man possessed and once we got to the hospital he collapsed onto the incubator and lost it, unable to maintain his composure anymore. Mom went into clinician mode and participated in rounds.. Damian was to have a spinal tap on his <2lb body to rule out meningitis. We left the hospital while they performed this procedure; we couldn’t bear to see him go through more pain. These were horrifying hours. Our stomach sat in our throats. When they finally got the initial read back on the spinal tap, the doctors sat us down and told us there was a possibility of infection based on the white blood cell count. The team briefed us on all of the possible scenarios and outcomes. Mom sat in a pool of breast milk as she was pumping and in too much of a haze to realize she had filled the bottles several times over while everyone was talking to her. Our nurse, Rashanda, insisted we hold Damian. We were so scared to touch his sick little body so she took his whole bed out so we could be close to him. She grounded us when our fears wanted to take over. The battle with TTTS in the womb was over when these boys were born but their battle with prematurity was just beginning. Our boys have impressed us from day one. We are in absolute awe of their fight. We are blessed.💙💙 . . . For more information on TTTS or to donate to along with our family in support please visit tttsfoundation.org #tttsawareness . . . #ttts #tttssurvivors #preemie #preemiebaby #prematurebaby #twins #identicaltwins #babies #babyboys #nicugrad #iugrbaby #twinstagram #twinning #degorias_deux #brothers #twinsofinstagram #family #love #twinmom #twindad #blessed
On Monday night we went to St. John’s hospital to visit my grandma at work. My Mom decided we should stop by the NICU where I stayed for 3 weeks after I was born. This is Bri favorite day shift nurse who took care of me during my 3 week stay. She hasn’t seen me since the day before I was discharged. It’s nurses like her who gave my mom and dad a peace of mind that I was in good hands. She was so HAPPY to see me and how big i’ve gotten. Hopefully we can visit again when my Favorite night shift nurse is working @dignityhealthstjohns @hellohumankindness #34weeker #iugrbaby #premie #premature #NICU #dignityhealth #nicunurses
Where to begin. Today my child of god turns 1. And I can’t believe I’m crying like a baby. You guys don’t know what we went through and what we still go through but I thank god for allowing this beautiful creation to be mine. You came into my life when I needed you the most and gave me that beautiful feeling of becoming a mother again. This little girl right here is sassy, feisty and very loud but we wouldn’t trade her. (Gets it from me) thank you for allowing me to be your mother💕 we love you very much and never forget that😘 #aaliyahselene #preemie #iugrbaby
I posted the story of Jackson and how the dogs reacted to him coming home. Also, there is some unseen footage of the day we brought Jackson home from the hospital. I’ve never posted it but finally decided it was time. Link I. Bio. ❤️ #dogs #preemie #dog #puggle #pug #beagle #chihuahua #dogsofinstagram
Alhamdulillah telah lahir putri ke 2 kami dengan selamat, sempurna.,. Terimakasih atas doanya y,. 😘😘 Baby Khaula C Rustandi cepet pulih y sayanggggg ,. 😘😘 Hix hixx masih belum bisa meluk, nyusuin langsung Krn harus mendapatkan perawatan intensif di ruang perinatologi,. Insya Allah bsok mulai perawatan Metode Kangguru y sama Ayah,.. next bunda Miss U baby Khaula sayang 😘😘😘,. #PEB #iugrbaby
I can’t believe it’s been over a week since we have a Liam update! Last week was a whirlwind and LJ had laser eye surgery Thursday to (hopefully) fully end our fight with ROP. Babies who are born prematurely are a risk for abnormal blood vessel growth in their eyes which can cause blindness (it’s what caused Stevie Wonder’s blindness). The surgery he had stops that growth. He was a champ and was eating regular bottles only a few hours after the surgery. He even gained some weight and is just a few grams shy of 7 lbs (bigger than both Mommy & Daddy at birth😳). We’re hoping this means we’re in the home stretch, but the NICU is a true rollercoaster (though definitely not as fun as a real one) and you never quite know what will be thrown at you. We ask that you continue to pray for our little warrior, specifically that we can get him home as soon as possible. • • • #nicudiary #day137inthenicu #iugrmoms #PrinceLiamMartinez #theboywholived⚡️ #26weeker #iugrbaby #iugrsurvivor #PDAsurgery #ROP #everyonesfavoritemicropreemie #micropreemie #preemiestrong #NICU #NICUMom #prematurityawarenessmonth #prematurityawareness #chroniclungdisease #NICUbaby #growingstrong #preemielife #micropreemiemom #mommyblog #momswhoworship #disneybaby #Latinamom
This is every morning! these two hang out! Gosh they love each other! God help when they get older
💕🎀 So 3 weeks ago at our 20 week scan we found out our little princess has IUGR... she was measuring roughly 1 week behind. We scheduled another growth scan for 22 weeks and they confirmed our little girl was starting to show signs of growth concerns. We were referred to Sheffield’s Jessups Maternity Wing for an emergency growth scan. They discovered my baby wasn’t receiving the correct levels of nutrition and blood from my placenta which was causing her to grow small and not gain weight the way she should. Princess currently weighs 347g and They have given us a target to reach 500g before they deliver her safely. We may be looking at 28-32 weeks 😪 our little angel is our miracle and we have every hope in the world she will make it and she will be safe 💕🎀 #iugrbaby #prematurebaby #rainbowbaby🌈 #nicu
I can’t praise the nurses, doctors and consultants enough throughout my care and now Hallie’s care. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ The Royal glamorgan hospital & University Hospital of Wales have been nothing but amazing, they don’t get enough appreciation. My consultant Dr Watermeyer was nothing but supportive every week and our Fetal Medicine consultant Dr Conner.It is purely down to these amazing professionals to be where we are today with Hallie. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ The article is featuring our baby girl✨ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ Please give this article a share https://www.google.co.uk/amp/s/www.walesonline.co.uk/news/health/heartache-agony-joy-being-nurse-15510910.amp ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #11weeksearly #iugr #iugrbaby #29weekpreemie #micropreemie