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Hirshsprungs disease affects the colon and causes difficulty to pass stool. This is because the nerve cells in the colon are not working properly. When the nerve cells don't work in this area, it will not allow the colon muscle to constrict and move thru stool. Causes of this disease is still unknown, and sometimes genetic. It is usually diagnosed in newborns who do not pass still after 48 hours of being born. Sometimes it can be delayed and caught later. This disease is considered chronic. Before Parkers negative diagnosis, I had never heard if this disease. I reached out to a few support groups in preparation, and these Mommas dealing with children with Hirschspungs disease are strong even with their load being heavy. I'm praying for all parents and children dealing with this disease!! #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #HirschsprungDisease #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
This picture was taken a little over a week and a half ago. Upon a routine chest x-ray, Parker was showing a enlarged colon with larger air pockets. They stopped her feedings, made her NPO, and suctioned air off her belly. They gave her IV fluids for a little while until both lines blew and swelled up her little arms. Before surgery had even consulted, we were being thrown the possibility of anal stenosis or even Hirschsprung disease. Surgery came and consulted and said no further action was needed and just to monitor. A couple of days later she had a barium enema study. All her structures looked normal and it only showed delayed colon emptying however, Parker had been pooping and passing gas just fine. They went on and preformed a colon biopsy to rule our Hirshsprungs disease, and that was negative as well! Looks like this little girl just needed to pass some gas! Thankful nothing was wrong but it absolutely broke my heart to see her go thru all that physical distress. #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
Baby Shower or Not? Before pPROM I had already had our gender reveal shower planned and invitations sent out. Like my first child, I wanted to have my shower early so I wouldn't be rushed to get everything ready for our babies to arrive. 3 weeks before our gender reveal, I pPROM-ed. Many people weighed in on if I should still have our gender reveal since the outcome of our pregnancy seemed unsure. I was faithful these little miracles were going to pull thru and didn't want to miss out in this opportunity to celebrate their arrival. My M.D. allowed me this time out of the house as long as I made sure I sat down most of the time and didn't over do it physically. Looking back, I am so glad we took the time to celebrate with family and friends these sweet blessings and I'm grateful for where we are now. #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
Can you believe this was right as I was being whisked away for an emergency c-section? I can truly say, I had put my full trust in God and had faith both girls was going to make it thru delivery. That previous night, I began to have some mild cramping. I don't know what was running thru my mind, but instead of paging my nurse, I called my husband at home and said, "I think I'm going into labor, what should I do?" He laughed and said, "Well, you should first call your nurse." I called my nurse, and she hooked me up to the monitor and sure enough, you could see I was having small contractions. They gave me an IV of magnesium for a few hours to try and stop the contractions. They didn't stop. I was transfered by ambulance to a hospital with a higher level NICU for the girls and once there, although I was only dialated one centimeter, they could see membranes poking thru. 10 minutes later, they were rolling me down the hall to deliver my miracle twins. By the end of my c-section I was 7cm dialated. These girls were coming either way!! I'm grateful for their outcome so far. I know it could have been much worse. I don't take a day for granted these sweet girls are alive. #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
We have been keeping our preemie away from all this winter sickness and flu. She has only been out of the house for her doctor appointments. On this particular day, I had went to work and felt l had been exposed to soo many sick people. We had alot of people come in with the flu, stomach bugs, bacteria infections, and common colds. I didn't want to take my chances of shedding it to Peyton so I masked and gloved myself that evening just to be sure. I know it was a little extreme but I'd rather be safe than sorry. The last thing we needed was for Peyton to be admitted back into the hospital due to illness. My husband laughed as he took this picture but I was certain I was protecting our daughter from any exposure. Lol #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
Today we had the absolute worst meeting about Parkers feeding progression. Have you ever had a meeting and walked out feeling attacked from all angles? That was today. Our daughter is tired from being pushed to feed. Apparently, it was miscommunication all around on what her plan should have been and Parkers expectations. She's tired from nipple changes, total feed increases, feeding too long, and the viscosity of her thick-it. So here we are, starting all over back at square one. This time, we made sure we walked out knowing a clear plan for Parkers feeding progression and we pray her team all stays on the same page. #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
This little girls fingernails grow so fast! I clip them daily but by the end of the day, they are prickly again. We keep little mittens on her so she doesn't claw up her sweet little face during her nap time. I'm going to try filing them down tonight instead of clipping to see if that will dull the sharpness. #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
With Parkers Left vocal cord paralysis, we have to thicken her feeds to "half-necter" so she will not aspirate. This is what we use to thicken her feeds. Its a white powder made of modified food starch and maltodextrin. Sometimes it's super tricky to get the consistency just right because the fat in breast milk can break down the Thick-It quickly and the milk becomes thin again. If the milk is too thin, the milk can go into her lungs instead of her esophagus and she can choke!! We are learning by trial and error the correct amount of Thick -IT and nipple to use so she has efficient feeds. She has to not only be able to eat her total feed but eat it in a efficient amount of time. #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
114 days in the NICU for Miss Parker and we are soooooo ready for her to come home!! We can't wait for rounds tomorrow so we can ask to be discharged! She's feeding by mouth, on 0.25L of oxygen. Parker is definitely loving eating by mouth, she weighs 7lbs and 13oz. She passed her car seat tracing last night! Miss Parker has done exceedingly well these last few weeks and I am getting so anxious to begin life at home with our family of 5. Miss Peyton is our super chill daughter. She only cries when she is hungry and just wants to be snuggled or sleep. I'm grateful for this because Miss Parker is such a fiesty firecracker, I'm certain we will have our hands full at home. I'm thanking God for these miracles and praying extra hard tonight Miss Parker will be sent home to us! #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
It was sterile time in the NICU and Miss Parker wanted to glance around the room and check out her other roommates lol. She looks so much stronger and she is so alert! She's extra spicy when she's upset and not afraid to tell you what she wants with her one working vocal cord lol #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
Miss Peyton is at home getting ready for Parkers arrival! She loves to sleep in her crib. No worries, we have a bed in their room and I sleep right next to her. She sleeps for 4-5 hour increments at night. I swaddle her in her sleep sack for bedtime and she goes right to sleep with a smile. The transition from NICU to home in regards to sleep hasn't been too bad. It took a few weeks but, Peyton will now sleep with all the lights off and no white noise needed in the background. #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
We had a meeting with our doctor team to discuss Parkers progress. Overall it went well. One helpful tip I've learned while on this NICU journey is to speak up and ask questions! No one can be a better cheerleader for your baby than you. I keep my own notes of her daily progress and follow up on any exams or scans she should be scheduled to have. Because of this today, Parker is off of CPAP and so far, doing very well on a half-liter of oxygen!! (I knew she could do it!!) Our next goal is to conquer feedings. I have no doubt she will do exceedingly well. I'm grateful for the discernment God has given me to be the best advocate for our children. #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
So THIS happened all day yesterday!!! After Parkers PDA ligation, there was a complication and she now has left vocal cord paralysis. We were unsure how she would do feeding by mouth. During the last month we have been offering her a paci during her feedings strengthen her "suck, swallow, breath" skills. They are starting out slow but Parker is super ready and LOVES to eat her food. She's feeding soo much better than her sister did when Peyton first started feeding. Parker''s taking her 15ml feeds and sometimes even 30mls when the nurse puts too much in the bottle, Parker will finish it ALL!! Grateful for another answered prayer and getting soo much closer to Parker coming home!! #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
Last milk post for a while but I'm just so amazed!! I kinda got kicked out of our NICU freezer.(but not really) LOL I brought a cooler with me during my visit to bring home old milk and they were only able to fit not even 1/3 of the milk I have frozen there!! WOW!! I totally thought this cooler would fit it all. This cooler is almost 2 feet tall!! #pprom #ppromawareness #ppromsurvivor #ppromsurvivors #twins #twinpregnancy #diditwins #twinsgirls #highriskpregnancy #miraclebaby #miraclebabies #bedrest #hospitalbedrest #pregnancybedrest #preemie #miraclebaby #miraclebabies #faithful #pprommiracles #pprommiracle #nicu #niculife #nicubaby #WeBelieveInMiracles
Sometimes when you pray for a miracle, God give you two 💗 11 months old today. How is it that in one month these girl will be a YEAR OLD?? It doesn’t seem possible. This has been the most fun and rewarding yet exhausting and demanding 11 months. These girls sure know how to keep us on our toes 😉 They are both sitting up great, not eating any food, still waking in the middle of the night, hate naps, love going on walks, and are really enjoying playing with each other! They both love to chew on their toes and their favorite thing to do is jump. Hazel says da da and ba ba constantly and juniper has become quite a ham. They both make some pretty funny scrunched nose faces and know just how to get your attention. 💗 I’m trying to soak up every single minute of them as these moments se to pass too quickly 💗 #adamstwins #hazelrose #juniperpearl #twins #twingirls #identicaltwins #miraclebabies #tttssurvivors #ttts #pprom #ppromsurvivor #nicugrads #babiesofinstagram